The midday meal programme could have been a boon for India’s children just as ICDS should have been. But Alas, though the programme was conceived impeccably the implementation and the monitoring was left in the itchy hands of the corrupt or as maybe, and apologies if it sounds cynical, its failure was seeded in its implementation as is the view of an activist who quips, “Perhaps the government does not want the scheme to function properly. They want problems to be created so that people ask them to stop the scheme altogether. Maybe they want to hand over the scheme to some corporate organisation”. It is tragic that 23 children had to lose their lives for the scheme to be exposed.

I agree with this view as it is one that is evident in many so called social programmes. Let us take education which is now a constitutional right. If every child was truly educated the profile of India would be transformed to the detriment of the political masters. Yet they want to look good to the world so after 6 decades of Independence they finally vote a Right to Education bill that defies all logic. Free education is from 6 to 14. What happens before 6 and post 14. An enigma. The pass percentage is as low as 33%. Looks good as statistics but does not get you anywhere. Then instead of sprucing their schools that stand on prime land but are often dilapidated, they come up with a 25% reservation for ‘poor’ children, setting criteria that allow access to middle class kids whose parents are willing to take some not so honest shortcuts. I state this with responsibility as I have witnessed it. So the idea that the state does not want the midday meal to work makes sense. Just as they rushed privatisation of education, they would be too happy to hand over the midday meal to corporates. Feeding 1. million kids makes good business sense. What one forgets was that when the scheme had been thought of, the idea was to have mothers and the community cook this meal! But surreptitiously things mutated to enable corrupt individuals to get their pound of flesh. Mothers mutated into NGOs often set up by interested parties or private contractors. Quality went for a free fall and nutrition too. Insects and lizards, worms and ultimately pesticides that resulted in the death of children.

The situation is terrible. Portions are insufficient. Conditions unhygienic. Utensils dirty. The list is endless. The reality is that no one cares for the children who are treated like a burden. No one is really interested in their well being and proper nutrition. The monitoring is on existent.

When after the terrible incident of Chappra, teachers were asked to taste the food, they went up in arms and even suggested that it be ‘tasted’ by street dogs. Though this was promptly shot down, it shows the attitude teachers have towards poor children. According to me teachers and students should partake of the midday meal together! Maybe that would change things.

What all this shows is the inability, intended or real, of the State to implement and monitor any social programme. All they excel at is formulating and drafting more and more of the same to gain political support that translate into votes.

The question is who will or rather can bell the cat

One thought one heard it all with the prayers to God to stop rains so that our traffic moves smoothly on Delhi pothole filled roads or that demure dressing protects you form rape (I wonder which diaper the babies that have been raped should have worn!) when a new shocker comes courtesy the ruling party. If we were to believe them than no one should be poor because you can have a meal for 12 rupees a day and if that was not enough another leader stated that you could eat well in Delhi for Rs 5! This after the planning commission has revised the poverty statistics and declared that : every eighth person living in urban areas is below the poverty line, while one in five rural residents is poor, the Planning Commission has estimated, hence the poverty ratio has declined to 21.9 per cent in 2011-12 from 37.2 per cent in 2004-05.

Dear Politician this game of statistics to prove that aal izz welll inIndia makes me want to throw up. You crunch the number and make some inane political statement and hope to get away, and sadly you do as many vote you back in power falling for your skewed and dishonest statements. Who do you want to fool? One does not need to be a rocket scientist to see poverty amidst your glitzy malls and gated communities. have you ever thought who build them? And how they live? And where there go? And what happens to their kids?

You come up with cleverly drafted options to meet your so called goals. You privatise schools and reserve 25% seats for the ‘poor’. I challenge you to do a survey and find out how many really poor kids get these seats. Oh you have taught us well. People know how to make fake certificates and fake rental agreements to beat your system. And it is kids of fairly well to do families who avail of this so called reservation which is meant to give good education to all. But does 25% meet the needs of ALL the children of India.

You say that 12 rs or 5 rs can buy you a meal. For you a daily consumption of 28.65 rs is enough to live in a city. I challenge you to so. And it is not only your 5 bucks meal but there are things like housing, clothing, eduction, health, transport! Or is this only for you.

I am speechless, repulsed, sick and ashamed of being a citizen of a country where no one cares about the poor.

Our politicians never fail to flabbergast me! The one that still has the power to startle me though one has come to expect the most ludicrous and preposterous statement from her is our very own CEO! The latest in her exceptional repertoire was her one line answer to a question posed to her about the water logging this city has to face after a heavy spell on rain. In her true inimitable manner she declared: Pray to God to stop Rains!

New Delhi is not the only city in the world to receive heavy rainfall. Moreover rains are the lifeline of our land. And our lady should be thankful for the climate change over the past decades because I remember Delhi when monsoon rains would hit the city non stop for days. Now we just have hours. Any self respecting city should have a proper drainage system. Ours has clogged drains and in my case we have a  peculiar rain storm drain as it stops tow houses away, where the owners have simply filled the drain and cemented it. Moreover the frenzy we have seen in the last few months where every square inch of a earth on the roads has been cemented makes it impossible for part of the rain water to percolate as should be the case. The cementing frenzy is to unable to fill pockets before the next elections.

The other excuse that is thrown at us for any problem we may encounter is the helplessness due to the multitude of agencies that rule our city. So why not sort this problem once for all. I am sure we as voters will welcome the move. If a girl is raped we are told the police is not under the Delhi administration and anyway women have  no business being out late at night, and even her daughter is scared after 10pm. If roads are flooded it is the responsibility of some other agencies . And this goes ad nauseum.

She is not the only one to come up with wise cracks like these; many of our politicians do be it their comments about the way girls dress to the very latest from the Bihar Education Minister who says:  he cannot guarantee that the disaster will not repeat itself. 

So let us take it from the top: if roads are flooded Pray to God; if you do not want to be raped stay at home and dress demurely and do not have a drink! We have had our share of this nonsense and it is not funny. We keep being told that Delhi is to be transformed into a second Singapore. It is glitzy malls and uber rich constructions that will make it happen. It is cleaning the city, disposing of its garbage, having drains that work and roads without potholes. We need to have an ace rain harvesting system and above all proper habitat by the ‘poor’ who play probably the biggest role in keeping our city going.

Maybe one should move in the other direction, I mean modernise the city from down to up.

Till then we are all praying.

Last week a young 11 year old became one the youngest to undergo bariatric surgery. She was born normal but undue spoiling and the lifestyle of the rich made her morbidly obese. This is the same country where babies on the other side of the fence are born with extremely low weights; where 5000 children die of malnutrition related diseases; where basic clean drinking water is a rarity for many; where millions still go to sleep hungry. On the other side of the fence there are many like this young girl who get overfed the wrong things to the point of becoming seriously damaged.

The lure of the west, the proliferation of fast food outlets in humbler areas, the easy availability of all junk food in smaller and thus cheaper packaging – a great marketing ploy -; the smart TV ads where superstars extol the goodness of packaged food are now making the poor leave their healthy fare and get lured by all these unhealthy products.

In our creche we have mothers giving Instant noodles and small bags of chips to their children in place of the home bead roti or parathas and home cooked vegetables that we saw some years back and that they still cook for their husbands. No matter how much we plead, the TV ad is not a match for us. I wonder how long it will take to see our first obese slum kid!

What would you do if you had to carry the body of your dead child in a plastic bag for miles at an end from the hospital where he was born? I am not joking but dead serious. This happened last year to a tribal couple in a country that boats of luxury hospitals, swanky malls and the world’s richest people: India. A tribal, Ayappan’s wife Valli, near term pregnant with child, had hypertension and anaemia. The nearby tribal mission hospital referred her to the tribal speciality hospital at Kottathara 43 km away. But this hospital was crumbling and many of its facilities, like the ope­ration theatre, were closed down. So Valli was referred to the Palakkad Medical College, over three hours away by jeep. By the time they reached there, it was too late—she gave birth to a still-born male child. The hospital denied the couple an ambulance to take home their dead child. Ayappan and Valli carried their dead child in a plastic bag and took the state transport bus. They had to change four buses before they reached Kalpetti where they buried their first-born in the corner of their field. This is one the heart breaking stories that appeared in a leading magazine this week.

The article is about extreme malnutrition in the tribal belt of Pallakad district, Kerala. I urge you to take time of your busy schedule and read it with your heart. In the last six months scored of children have died in the tribal cluster of Attapady. The villages are in a pitiful state with no drainage or safe drinking water and scant food. Women are severely anemic, and children malnourished. Most of this happened after the land of the tribals was taken over by mafia in the name of setting up windmills. The tribal have no access to the forests that once were their feeding bowls, ensuring them proper nourishment. You can get the details of this horror story in the article. Some tokenism and knee jerk reactions have taken place, but everything will be back to square one. The tribals are not understood and easily marginalised in the name of development. yet with so many infants deaths the tribes are worried they might just be wiped out.

To me what is disturbing is that this is happening within the knowledge of politicians and administrators, and now the media. It supposedly has all the social hand outs that the government sets up but none of them work. The hospital is decrepit, the creches do not work and I am sure no school exists. No one is truly interested in the area as it only returns one MLA!

Is life so cheap in our country? Our these children not ours? Are they not protected by the rights enshrined in our Constitution. Have we lost our consciences forever? Will once again this terrifying story be forgotten as all others that do not concern us directly?

Try to imagine the pain and sense of helplessness and hopelessness of the mothers who see their children dying. Try to imagine the distress and anguish of tow young parents carrying their dead child in a plastic bag for miles and miles because a hospital denied them an ambulance? And if you can then will you remain silent or scream.

Following the terrible tragedy that killed 23 children in Bihar, our city went into reviewing mode with officials taking stock of the situation of midday meals in the capital city. An article published this morning in a leading newspaper details the issue. I was aghast to read that the said officials gave themselves a pat in the back saying that over the past two years no sample had been declared unfit for human consumption. What is this a joke! They were quick to add that 50% of samples collected failed the nutrition test. I am lost. The midday meal is meant to provide nutrition to children. I agree that nutrition levels need to be tested but how does the fit for consumption but come in. Why should meals meant for children be tested for their fitness for human consumption. This in nothing short of mind boggling.

Delhi’s record is abysmal. 80% of the food cooked is substandard. It is time something was done. I shudder to think how all the schemes heralded with such fanfare will perform when implemented. The answer is quite evident. Either there is a lack of will and only political drama or the whole system is so corrupt and poorly conceived that no programme can ever be well implemented. Why should be bother many would think? Well first and foremost it is our money. But that is not all. Under nourishment is something we have to look at seriously. If children are malnourished then their entire development is compromised.

As midday meals seem to be the flavour of the day following the recent death of 23 children, be are hearing a slew of horror stories from insects and lizards, to scorpions, of cooking on sceptic tanks next to stinking loos. And as the story enfolds we get more and more disturbing news about the way the midday meal programme is being implemented. And believe it or not Bihar even returned 500 crores to the centre, money meant to build kitchens and buy utensils for the midday meal scheme. The bottom line is that no one cares for children. And schemes made for children are the easiest to be hijacked.

The midday meal scheme is probably the best solution for dealing with malnutrition in children as it covers children from 0 to 14. Pregnant and lactating mothers are also meant to be covered so the critical nine months and 1000 days of good nutrition and constant monitoring should ensure no under nourished child in India. It is something we all should be proud as it is the largest school feeding programme. But sadly that is not the case. We should be given the Nobel for botching every programme meant for the poor and diverting it to bottomless pockets. How can anyone have gall to divert funds meant for the hungry and the destitute. But we have. Learn from us! You don’t believe me? Here is another proof.

A programme launched 2 days ago in this very cit, the capital of India, and meant to arrest anaemia in children by giving them iron and folic acid landed 20 of them in hospital. No wonder parents are scared!

Wonder how the new Food bill will fare. Midday meals are an intrinsic part of it!!!!

Time we woke up!

The writing is on the wall if anyone, just anyone is willing to see. We know politicians and their cronies and administrators and their lackeys will look away and go an hunt for the most implausible and far fetched explanations that no one, but they, will buy. The likes of us may utter a few concerned exclamations, maybe allot it some space in their next social event and move on. What I am referring to is the horrific death of 23 innocent children whose only fault was to have eaten their midday meal in their school, the very meal meant to provide the very nourishment they need to grow healthy and strong. Instead it too away their lives.

When we began pwhy way back in 2000, I was involved in some networking with the Delhi administration and  one of the things discussed were the midday meal. At that them a proposal was mooted, but of course rejected, of having mothers form cooperatives and cook the midday meal of the school their children go to. Needless to state that the reason it was shot down was that it did not allow space for corruption of any sort. Instead the programme was used to gratify friends and acolytes enabling them to loot abashedly. In some states this approach was selected and needless to say the children get well cooked and nourishing hot food. In some states however the ‘contract’ was awarded to big businesses who dole out supplements of sorts to replace the midday meal of creches and schools. But ‘supplements’ are supplement to something, and these children have nothing to supplement. They often depend on this hot meal to survive and hopefully thrive.

Sadly this is not the case. We are so corrupt that we do not even spare children. The midday meal looks great on paper but this not the case in reality. In the national capital the food is sub standard and barely edible. Our children are fed with grain crawling with worms, flies and even lizards. In one state, the contract was given to a liquor baron. The bottom line is that the amount of money to be made runs into thousands of crores and everyone wants a share of the pie. Nobody gives a hoot about the beneficiaries: voiceless and hapless children.

The midday meal or a clone of it is part of the new Food Security Ordinance. I cannot begin to imagine how it will work better under this new cloak. A quick glance at the series of article on the subject paints a gloomy and disturbing picture.

When we ran a small residential unit for Manu and our boarding school aspirants, we had a tight budget, but the one thing we never compromised on was food. I cannot imagine what kind of being you have to be to want to enrich yourself on food meant for children and starving people.

I do not think that the new avatar will change things for children but know that it will enrich many on the way. And no one will fight for the children. They will continue to die.

How many deaths will it take to clean our Augean stables.

It is a reality that should make us hang our heads in shame. In a country where millions go hungry every day, where 5000 kids under the age of 5 die every day of malnutrition related diseases, we allow food grain to rot every year. The latest report comes at a time when the Government has rushed its Food Security Bill through an ordinance. In Bhogola, the wheat sacks are kept in the open and are completely getting drenched in the rain. The ones that are covered with polythene sheets are also not protected as these sheets are torn at places. Rotting grain is an old issue. Multiple articles and stories have appeared in the media over the years. In spite of Supreme Court orders and a plethora of social programmes that are rammed down our throats time and again, nothing has changed. India remains a poor country with pathetic roads, no electricity, insufficient and poorly run schools and abysmal health care. An interesting article explains in its own manner the reason for this immobility. Now we have all been ‘gifted’ the Food Security Bill, a supposed panacea for all the nutrition problems of the country. Yippee!!! I wonder how a given quantity of grains to 800 million people will solve malnutrition and address the problem of undernutrition.

Breaking News. I interrupt the flow of this post to share some terribly distressing news: 20 children under the age of 10 have died after consuming the midday meal served in their school. It seems the rice had some lethal pesticide in it. It seemed it may not have been properly washed. Whatever the reason, nothing can forgive this criminal Act.

The midday meal is also an important part of the said Bill. If they cannot get their act together now, what miracle will occur to change things. Maybe one should have set one’s house in order before conjuring new plans. Malnourished children die of diseases that are preventable. Maybe we should look at this more closely rather than dole out more suspicious hand outs. It is all in the name of garnering vote banks: the ruling party brings an ordinance, the opposition will not dare oppose it in spite of its flaws as every one needs to woo the poor. There are sufficient schemes in place the intelligent and honest approach would have been to simply ensure every one of these work adequately. But that is not the way things work in our country. You need new programmes to add new avenues for corrupt people.

The new ordinance has flaws. The obvious one is that a certain amount of grain given to a person does not solve malnutrition which is the main bane of the country. This needs preventive medical care, sanitation and safe drinking water. To curb undernutrition the 9 months and 1000 first days of a child are crucial. Early malnutrition cannot be reversed.

This bill is no magic pill. It is just one more political gimmick aimed at retaining power. When will we see politicians truly willing to put their house in order?

This is in continuation of my earlier post Health a la Carte.  I had ended the post with the following words: So as per plan we shipped the husband to the hospital late in the night! Imagine my surprise when I was told that he had been given a single room! Was it an answer to my entreaties or to my prayers. I do not know. But I feel a little better knowing I beat the system. How naive I was! or should I say stupid, credulous and dupable! I really thought that prayers and entreaties could work in our world. That night I went to sleep believing that better sense had prevailed and we had gotten a room where we would just have to pay the difference between what our insurance gave and the going rate! When we had shipped the husband late at night in pouring rain,  so that we all could spend some time with him, we were reconciled to him having to share a room. So when we got the news that he had been given a single room I really believed that my stratagem had worked.

I woke up before dawn and reached the hospital. I was happy to see my husband fast a sleep in his ‘single’ room. I sat with him and we talked about things that we often are not able to at home. Some reminiscences, some plans for a morrow we still are unsure of. A sort of bucket list of twilight years. Anyway I was happy to see him in his room, though the needles and lines made me uncomfortable. Some time later my daughter came in and as we were not sure of the time he would be taken into surgery, I decided to take a short break and be back after a few hours. I had barely reached home when my daughter called to say 2 units of blood were needed and thus 2 donors. She would be one of them. I rushed back with my son in law. By that time the husband was in surgery and it was waiting time. My daughter and I decided to wait in the famous single room as we were promised that we would be contacted on the phone by the OT when it was all over.

The phone rang and we both jumped hoping to hear that the surgery was over. But the call was from the administration and asked me to come down to sign some paper. I went to the office and was given a blank sheet and asked to write that I was willing to pay the difference in the room charges. A while later another call informed me that actually I had to sign a proforma! Wonder why I was not given the ‘proforma’ before. I duly went down and was given a typed letter that stated that I would pay all the additional charges that went with a single room: surgery, anesthesia and so on. The letter was dated the previous day. I signed the letter but wrote that this was given to me at a particular time one day after the date of the letter.

I knew I had been had! The time when I was given the letter was when my husband was in surgery and there was no way I could take him away. The proforma had not been produced when admission took place on the previous night. Had they done so, we would have gone for the double room option. We were asked to deposit some money and it took a lot of patience and tact to get a figure out of these people. 50k were deposited and we were told that we would be given back any money not used. But there was a rider! if the money was under 20k we would get a cash reimbursement, and if was over 20k a cheque. Would you believe me if I told you that the reimbursable amount was 20 040! I am still waiting for the cheque.

When I thought this drama was over we were in for another surprise. Another call informed me that the three days sanctioned by my husband’s PSU had expired. Now the husband got there at 10pm on the 9th, so in my simple mind he was covered till the 12th morning. Not at all. The first day were the 2 hours from 10pm to midnight counted as one day. Though I got one day extension, we brought him home on the 11th.

I do not know what awaits us now. I know that we visit the hospital with the results, we will again have to go through a seduction game aimed at comforting and scaring us at the same time. But I am prepared for the onslaught of their well rehearsed spiel and have my answers ready. I have read and reread all I possibly could – God bless the world wide web – and will not be caught off cards. Come to think of it, I may not even take the husband!

The beast gnawing mercilessly my loved one for the past year now has finally been exposed. It has a fancy name meant to scare you and hold you in fear: Hodgkins t cell histiocyte rich large b cell lymphoma. This is the third time it has dared attack my loves ones and won the last two battles. This battle is mine to win. The last two times it kept us in such dread that we were terrorised to called it by its name. The C word was banned in my home, the same home I sit in today in the early morning and write these words. But this time I named it before anyone could give me medical spiel. TO me he is ZOZO. This t cell and b cell saga will not instill the alarm and panic it did last time. If you google it you find a load of scientific mumbo jumbo that means nothing to the layperson and is again meant to terrorise you. Actually the whole C Saga (cancer) seems to have been created to enrich the medical fraternity by giving it a larger than life image. When you patiently crawl and sift through all the information you get, you find that it has a fairly good chance of cure. Sorry I hate the word remission. I will hold on to cure.

However I want the control of the cure to be in my hands and blissfully my family doc will hold my hand and avoid I fall into the traps commercial medicine will lay for me along the way. In addition to what I feel is adequate and humane, I will draw strength from the age old medical traditions that have been so brutally and contemptuously been cast aside by those who think they know all. I will also starve the beast with all the foods it hates. I will go to the end of the world and farther to ferret out all every single option that will help my love one heal.

As I said earlier this is a battle I either win or die fighting.

This is the brave side. The one I have carefully and painstakingly crafted in the past weeks, since the word C entered our personal lexicon again. It is my battle gear: the words and expression to battle greedy men in white; the face to maintain while being buffeted by commiseration that will annoy, advise and questions you have to answer and above all the one to be perfected so that my loved one feels that everything is possible and that cure is just around the corner. Can’t he see it in my face.

This brings back a memory long forgotten. I must have been four and we had a terrible car accident in which my mother had broken many bones: ribs, sternum etc. I was barely hurt as she had protected me – no seat belts then – and looking at her started wailing thinking she would die. She just kept smiling, hiding her pain, and talking to me in reassuring words till help came, last as she had not let out a scream. I am not Kamala. But today Mama I need you to give me that strength and composure. I know you will.

However behind this brave face that is I hope well in place, I am breaking into million pieces. I am angry, scared, hurt, helpless and alone. The tears that are welling inside me threaten to come out and it takes me all my strength to stop them coming. Do tears dry inside you. I hope they do.

The C word can shred you of your dignity, take away your wealth and your life’s effort. I will not let it do so. I will heed good advice and shun the rest. I will draw strength from my nuclear family, my little grandson and the one that came into my life a decade ago and all my pwhy family, that is all of you.

Maybe pwhy came into my life so that I would not be alone in my time of trouble.

A news item this morning brought back memories I had vowed to forget. The item entitled: Rice with insects, clothes with holes took me back to so many instances of shameless beings who feel that anything is good enough for charity. We have had our share of such people and their interpretation of the word ‘charity’. According to many ‘rich’ ladies everything is good enough for charity: broken toys, incomplete games, copy books filled up to the last page, torn and useless clothes. We were even ‘gifted’ an undergarment with a sanitary pas still attached to it!

The article I mentioned above is about the relief being sent to the flood victims of Uttarkhand. Why do people think that poor people or disaster afflicted people have no dignity or self respect. Why do people not put themselves in the place of those they are sending their supposed charity and think how they would feel. Is rice with insects something they would eat?

Donations we receive time and again do not seem to be something that has been done from the heart, clothes carefully chosen, washed and ironed before they are packed. It seems more like someone is emptying cupboards and store rooms and instead of selling it to the kabari wallahs, makes a phone call to a chosen NGO and asks them to come and pick the ‘donation’ up. We have been caught in this too many times. Now if the phone rings and one recognises the number of one of the ‘generous’ ladies, one does not pick the phone up. I am sure the said lady has a list of NGOs and just moves on to the next.

Over the years we have had many such experiences. One of the most upsetting one was when the PR person of a known actor badgered us to cart a child who needed heart surgery to some place to be interviewed! The flip side is a letter I received from a young child asking me whether it was wrong  to help those in need. Thank God for people like her otherwise one would simply give up on life itself rather than be part of this ugly world.

I have been often asked why we sponsor open heart surgeries for the poor who can according to them have more kids! I have given up getting outraged. It is too exhausting. How do you explain to someone that a mother whether poor or uber rich loves her child in the same manner, that parents whether poor or rich will do everything they can, and in the case of the poor sell everything they possess to give their child the best treatment possible. How do you explain to someone that the loss of a child is a painful and traumatic for any mother rich or poor. You just don’t. You simply grit your teeth and walk away. I remember the night when the story of the first open heart surgery had been aired with my number and the strange and disturbing calls I received throughout the night. One caller asked me if I could guarantee that the operation would be successful and the child would live. I felt like telling him that I could not guarantee whether he would see the next day, but rephrased my thought my telling him I could not ‘guarantee’ whether I would be alive. I would like to tell that caller that the boy is alive and kicking and is in class XII. And before I end this tale, I need to tell you that the fact that the story came on air is also worth counting. Actually a journalist friend had written a piece about this boy in a leading newspaper. It was to be front page on the Sunday edition. A late night call informed me that the story had been killed and replaced by the story of a rich lady who had paid 50K to the person who had found her lost dog. This made me so mad that I did what I never do: asked for a favour!

There are many instances that reveal this ugly aspect of our society. One of the most hurtful one was when a lady flew into a rant when I tried to explain to her how our boarding school programme ran. She could not understand how one could spend so much money on just a poor slum kid! It took all my savoir faire not to slap her.

India would be transformed if we accepted the concept of the neighbourhood school. But that would mean accepting that our child share a bench with our driver’s daughter.

Long way to go….

I went on a net search to find the origin of this expression. This metaphor was coined by Stephen Covey and seems to be a way of strengthening family ties. It is definitely worth a read as it could help restoring trust within members of a family. I will however take some liberty and use the same expression in a slightly divergent manner. We all face difficult times and have our own ways of facing them. When faced with a situation when a dear and loved one is facing emotional upheavals and processing facts that are painful and often felt as unmerited, they rely on their partner to draw the strength they do not have and take the decisions that they fear. This is where I stand today. In all the challenges that I have faced during our 40 years together, he has been the one to hold my hand and walk me through. When I have been slighted by one and all, his trust remained unwavering. Be it a personal or a work issue, he has never failed me in any manner whatsoever.

Today he has again put his trust in my hands and I cannot fail him. Starting this week I will have to take life altering decisions and stand by them. I will have to answer questions, will have to face commiserations and listen to a plethora  of advice with a smile on my face and yet firm in my mind that I will only follow my intuition and hart. This is a journey I do not look forward to and yet cannot escape. The roadmap is not in my hands neither is the final destination but whatever it may be, I will be held responsible for every step.

To be able to undertake this journey I need to fill my emotional bank to the brim as I will be drawing on it to simply keep myself afloat and moving ahead. This can only be filled by the love, trust and support of all those who have believed in me in the past years and have become more than family. Without each one of you I will not be able to keep my brave face on and not break. I hope you will be there for me. 

I have always believed that nothing in life is fortuitous. This in reality is a lesson my father gave me quite early in life when he told me that no at single leaves moves without the will of a higher spirit. For the religious I guess it is God in whatever shape, for the non believer it could be a greater force. Anyway the outcome is the same. Every thing happens for a reason. I got a mail this morning from a very spirited young lady I admire immensely. She wrote in French and I reproduce her words and give a translation to the best of my ability.

Mais en même temps, on a de la chance de vivre au moins jusque 50 ans, il y en a en ce moment qui meurent de faim avant l’âge de 2 ans, ou qui meurent entassés dans des bateaux d’immigrés, ou des enfants soldats. Tu sais tout ça mieux que moi. La vie nous donne une chance d’être nés dans des milieux plutôt sécurisés, et on sais que ce sera le cancer ou un arrêt cardiaque qui va sûrement nous surprendre un jour. On a le choix de vivre sa vie comme on le  veut en attendant.

“But at the same time we have the good fortune to live till we are fifty or more whilst there are those who today die of hunger before they are two, or those who die crammed in immigrant boats or child soldiers. You know this better than me. Life has given us the advantage to be born in secure and privileged environments and we know that it will cancer or a heart attack that will catch us unawares one a day. Till then we have the choice to live our lives as we want to.”

In the midst of all the kindness and support that have been coming my way, it is these words from a very young lady that brought me back to hearth and out of the state of self-pity that I was finding myself sinking into. I said it in one of my last post cancer is just another vehicle of death like millions of others some as innocuous as a banana peel! I was about to let myself be ‘seduced’ by the larger than life image many have given this ailment as it’s cure has so many zeroes attached it that it makes it dazzling to our innocent eyes. And we get lured as carefully scripted and delivered spiels are directed our way. We are so overwhelmed by this manufacture hydra headed monster and we allow it to take all the place in our lives. And in doing so, we forget all the wonderful things that have been so generously gifted to us, the first being the enabling environment to make it this far.

Instead of spending all our time and strength and money (we often do not have) in looking for cures proliferate as we are such easy targets, let us take a few moments and look at all that has come our way and feel deeply grateful for not having been born a child who would never see her second birthday after having slept almost a thousand nights hungry. In a country where almost 5000 such innocent and beautiful children die every day robbed of their morrows, we have seen 5 or6 or 7 decades. Isn’t that precious. Have been thankful enough for this wonder or just accepted it as our ‘due’! So of we go the ‘due’ way then the cancer is also our ‘due’; we cannot be selective or dishonest.

We still have time and above all have choices that we can exercise. Think about those who have none, even when attacked by the same beast. We can live our remaining years either in ‘remission’ and abeyance and get lured by this new lexicon that is thrown at us or treat this ailment as we would any other and live each day as if it was the last doing all that is left on that forgotten bucket list of ours.

The Grim Reaper will come at the appointed time. Till then we have the luxury of living life as we want. Are we not blessed?

For the past month or so you may have seen a flurry of posts that sound more personal and often have nothing to do with pwhy or any of the subject I usually rant about. I seek your understanding and extend my apologies. I am a mere mortal with her shares of problems and challenges. Some are too insignificant to be shared  and blow way. Others however have the power to annihilate you totally if you are not careful. I am at such a crosswind at the moment.

Over the past few years I have come to realise that writing has become my catharsis. By laying my soul bare on the a sheet of paper or should I say a bland screen and pressing the key that will make the words fly across the universe I feel a tremendous emotional release. It is almost a sense of freedom, or rather the warm feeling that there are wonderful souls to share my pain with, souls who will understand and lend a helping hand.

I entreat you to be there for me in the difficult days that await me.

A little word from you will make all the difference

 How would you feel if your labour of 13 years was judged in 3 days and dismissed as inadequate and unworthy to be given a second chance? Not good I presume particularly if you have spent 13 years of your time to build it brick by brick from scratch. Sadly this is what happened to me, to us at pwhy a couple of days ago. I will not go into the details. I hold no bad feelings, I gave up those long ago. I simply hope against hope that this unfair dismissal will not cast a slur on the relentless effort of those who have put heart and soul in making pwhy what it is today. However, when such occurrences happen, I feel the need of taking a harsh and candid look at what we have achieved, to assess where we went wrong and could we have done things better. The recent incident made that more imperative than ever.

I feel particularly hurt as it seems that a lack of some creature comforts that could have been sorted out, reflect on the hard work of a wonderful team and the morrows of almost one thousand deprived children. These children depend on the generosity of donors the world over and the slightest slur can put an end to their hopes and smiles.

I chose to put a picture of the wonderful smiles of Umesh and Anurag who are two children of our special section and have been with us for many years. I browsed our old pictures and found these! How big they have grown and how happy they look today! I am not boasting but had we not been there I wonder what would have happened to them. For the past decade, these two lads and many of their companions have been coming to pwhy and every day and spending some hours laughing and learning, something that is the right of every child but is often denied to children with special needs. If just for that I think I can say we at least did something right. I still remember the cold morning when a lady dropped in to our office with four or five kids in tow, Umesh being one of them and asking us if we had a class for children with special needs as the one these children went to had suddenly shut its doors and moved to greener pastures. It did not take me a second to tell her that we did not but would start one.

And our first class for special children was on the

pavement. It was winter and a blissfully a sunny one, so the classes could be held out in the open. They shared their space with a bunch of class X boys who were busy preparing for their Boards. But come the heat and it became impossible for the special class to stay in the open. A quick switch was made and the English classes that were held in a small mud hut became their classroom. Soon primary classes were added and we taught every where and any where: a reclaimed park where we erected a lovely tent, in between buildings
when we were thrown out of the park, in a reclaimed garbage dump. Any space would do, as long as we could continue our work. From a handful of kids, we became hundreds and even touched a thousand! We fought every battle needed: the slum lords, the wily unions, the scheming politicos but survived each battle. We met every challenge thrown at us and found solutions: be it life saving surgeries, destitute women or unfair court cases. We did at times have to lick our wounds but they healed faster than we could imagine as they seemed paltry compared to the smiles that filled our lives.

Our kids have grown. The little girl leading the morning walk of our very first creche is now a stunning young lady in class VII. She studies in a public school as her family has understood the importance of education and has tightened their belt to give her the best education. One of our first students in class I has completed her schooling and is now a teacher at pwhy. A young boy who joined the classes we ran for a gypsy camp because of the young international volunteers who taught there. He completed his education, worked as a teacher with pwhy and is now an international ramp model!

There are so many heart warming stories that make up the 13 years of project why. All of them have been shared in the 1500 posts of this blog. We have also shared our errors, our lapses, our failures as candidly as possible.

Today when I stand at a crossroad, wondering whether it would be wiser to wind up this unwieldy project that has grown because I followed my heart at every single moment, or maybe scale it down by applying some hard logic leaving the heart aside, I just have to take a walk down memory lane to see how absurd the idea is.

I only wish people did not judge 13 years of work in 3 short days!

My very first encounter with the word ‘cancer’ was circa 1957. My grandmother was diagnosed with ‘cancer’. I was five. All I remember is mama’s silent tears as she read a letter that was delivered to her through the weekly diplomatic bag. We were in Rabat where my father was posted. In those times there were no dial up phones or internet. News from India came once a week in the ‘bag’. Sometimes later I was told my Nani had ‘cancer’. I did not know what ‘cancer’ was. I only knew it made my mama sad and sometimes made her cry. cancer was a bad word. That is what the little five year thought and went with her life. On July 13th 1958 a telegram arrived. Telegrams were often bearers of bad news. My Nani had died. ‘Died’ was also a bad word as it made mama cry and papa sad. She had died of cancer. Now the little girl was sure that ‘cancer’ was a very bad word! I did not know then that it would become my greatest enemy with many battles lost!

Life went on. Between postings across the globe, we always spent time in India in Meerut where my grandfather lived. For the little girl it was her Nana and Nani’s house but this time there was no Nani. She had died of cancer. I had memories of her, memories that still linger in my mind today and bring a smile on my face; memories of baths taken together, of mangoes eaten under the mango tree, of delicious food my Nani use to cook sitting on a charpoy under the same mango tree. As I grew up, my mama told me many stories about my Nani and I realised what a special woman she was.

The word cancer would reappear in my life as I grew up from child do adolescent. Mama had a lump, mama needed surgery and a biopsy. But then all would be well when the results came in. Cancer was always a fear that kept cropping in and out of our lives. But mercifully till 1989 it remained just that: a fear quickly allayed.

But things were to change forever. On a sunny afternoon in the summer of 1989 a phone call from my father changed my life forever. We were in Prague on a posting. My parents were in Paris and had promised to visit us. We were all excited at spending some time together in the city where I was born. The call was from papa. Mama had had an opacity in one of her lungs and had had what looked like a stroke as she seemed to have lost her recent memory. I rushed to Paris and was shocked to see a woman who in no way looked like my mama. She was lost in her own world and frightened like a child. In hindsight that was the day I lost my mother. The last year  of her life she had been hijacked by the opacity as we were not allowed to use the word ‘cancer’. I do not know whether it was instinct or vanity but mama never visited a doctor, never wanted any treatment, never agreed to pain management. She bore it all with rare dignity and great courage. She died in my arms living life to its very end.

It was hard on papa and I but we respected her decisions even though her hearts broke each time we saw her smile through the deep lines of a pain she tried to hide. I wish I had known about alternative therapies, about nutrition, about the many ways the beast could be fought. But we were greenhorns papa and I, and only knew about medical treatment that shred every ounce of dignity you had. We had ignored the beast as that was what mama wanted and he took her away.

As papa and I sat licking our wounds and missing her smile, the beast decided to strike again, this time it was papa. Had he somatized the ailment that snatched the love of his life. I do not know. What I know is that one fine morning papa complained of a bleed. It was the beast again, the one who had kept me in fear for half a century. This time we went for the medical ‘protocols’ that translated into a mutilating surgery that robbed my father of his dignity and will to live. It took just 29 days.

I was told that I was high risk, and that I needed to be checked every year. This was unacceptable to me. I would not live my life in fear of the beast but instead of trying to avoid it by nor naming it and letting it run wild, I would learn every thing about it. I read books and more books, survivor stories, alternative therapies, different options. I learnt about nutrition that could prevent it from attaching and put myself on a diet. I began to exercise, meditate, do yoga, gi quong. I had to take the bull by its horns and rid myself of the fear I had nursed far too long. I was ready for it should it attack.

But it had other plans. Surreptitious and insidious ones. It again attacked a loved one in the most unexpected manner. But what it does not know is that I am prepared. First of all I am going to give it a name of my own and address it directly. Zozo is what comes to my mind and Zozo it will be! So Zozo, you want a fight, you will get one and remember David conquered Goliath.

I do not know why you have been given an exalted status. People die of a myriad of illnesses but no one says a malaria survivor, a leprosy survivor or a dengue survivor. Death comes at a given time, and you are just the chosen bearer. Maybe you serve the interest of pharmaceutical businesses and commercialised health care. And too many fall into your trap. I to did once, but not anymore.

 I am ready for you in every which way possible. I will make informed decisions, I will use an arsenal you cannot even begin to imagine. I will chose each and every weapon I have mastered over the years. I will starve you giving you all the things you hate. I will hit you with targeted bullets of all shapes and sizes. I will not leave you a moment of peace. This is a battle where if needed David will die before allowing Goliath to win.

Let the battle begin!

Blissfully till now my trysts with the medical mafia were few, far away and second hand. They were oft recounted by people I knew and sometimes by my project why family for whom private – commercial – modern medicine is a sine qua non to social mobility. Just like for weddings they will be beg, borrow and steal to get their dear ones admitted to one of the top medical five star facilities. I feel appalled and angry when I see people paying tens of thousands of rupees for c

Just like public schools mushroomed a few years back, private hospitals, some obscenely grandiose, are proliferating at every corner of our city. They come as a counterpoint to the avalanche of private health insurance companies that promise the world and more. Somehow the whole symphony sounds extremely false and is the absolute opposite of the spirit of the Hippocratic Oath! You even have a modern version now! I think I am going to write a desi version sometimes in the near future.

I have never been one to plan life with logic and good sense. I am more the one who leaves everything in the hands of the one residing above and take life a day at a time. So I am not the one who took time reading the fine print of a loved one’s insurance cover. A simple query that was answered by a short: everything was enough to satisfy my fleeting need. I must confess that there are moments or rather issues that I deal with hubris.

Someone had other plans as my carefully crafted world got a blow that almost knocked me out. In spite of all my careful orchestrating I forget that life’s symphony is composed by another we have no hold on. I who had clamoured with misplaced confidence that I would never – never say never again- allow myself to be caught in the vortex of private and commercial healthcare suddenly found myself in the midst of it! The never read lines revealed their truth. The everything so easily accepted turned out to be a maze best typified as illogical. It turned out that the post and number of years toiled in a PSU entitled you to a double room. I wanted a single one. Naive as I am I thought that paying the difference would be sufficient! Not at all was what I was about to discover in a well staged and acted play.

Twenty years ago, when my father needed a surgery there were no super speciality hospitals. You either went to a state run one or chose a nursing home. I selected the later. I was given a price list with different items, one of them being rooms. I chose the best. The rest of the items were fixed! But that is not how it goes now. It is the room that defines the price of the rest of the items be it the OT charges or the nursing ones. I wanted a single room for many reasons and tried to dig my heals. I was sent from pillar to post as I kept asking why this could not be. I was met by a series of people whose nomenclatures seemed more appropriate in a corporate house than in a home of healing. I got the whole enchilada from the kind and polite PRO, to the less kind and polite god knows who; from the seemingly understanding secretary of the Doctor to the most supposedly humane Doc who sent me back to another set of people whose kindness and politeness differed. After having been swung from here to there I was ready for the kill: a meeting with the head of finances, Cerberus herself, devoid of kindness and politeness who barked at me that there was no way I could get that single room, and if I did want it my bill would grow at an exponential rate. And that any way there were no single rooms available. And anyway you are a book judged by its cover and I was not wearing the right shoes, carrying the right bag and dripping with the right jewels.

I came back licking my wounds and trying to rearrange my head in accepting that my poor partner will be subjected to the snores of another. Trying to come to terms with the fact that we would not be able to be with him as a family. So alternate plans were drafted and it was decided that we would admit him as late in the day as possible and get him out as soon as possible. I did not know then that the ‘protocol’ – a word with a whole new meaning for a diplomat’s daughter – was to keep a patient in ICU one whole night even if the surgery is minor. Actually in state run hospitals they would send you back in a few hours. We got our open heart surgery kids back in three days! But we are now in the realm of commercial health and the meter has to keep running for as long as possible. Makes me sick when I see the millions who cannot and do not get access to any form of humane treatment.

So as per plan we shipped the husband to the hospital late in the night! Imagine my surprise when I was told that he had been given a single room! Was it an answer to my entreaties or to my prayers. I do not know. But I feel a little better knowing I beat the system.

Popples a.k.a. Utpal left yesterday morning. It was heart wrenching as for the very first time after many comings and goings he was sobbing. Normally I got a Bye Maam’ji as he hopped into the car and most of the times did not look back. This time however there were tears an hour before leaving and then in the car. I was deprived of my hug and smile. I would have liked to see him go with a big smile as this is a time when my emotional bank needs to be filled to the brim as I am going through tough times and will need all  the support I can muster. A weeping child was not  what I wanted to see. It almost felt ominous and I quickly brushed the idea aside. I could not afford to go that way.

Later when I was a little calmer I tried to analyse young fellow’s behaviour and it all came to my in a flash. Utpal had spent the whole summer holidays at home and had a great time. But that was not all. I guess for the first time he felt part of the family, a new experience for this little lad whose life till recent times yo-yoed between sordid homes, midway rehab homes, boarding school, our women centre, and many others including mine. But this time he had savoured the comfort and security of a home though he is still battling with relationships, something we need to help him with. Agastya being there made the  departure harder as the last month had been filled with fun and laughter. I guess anyone would have cried his heart out. I could make peace with the tears that were far from being ominous were a sign that we were all hoping for.

Today I went to GK M Block market a favourite haunt of my two little fellows. The reason: the toy shops of course.  But I just needed to purchase some inane need. As I walked into the market I suddenly felt terribly alone. There was no one tagging along, no little hand in mine and no one calling me Nani or Maam’ji! No one dragging me to the ‘toy shop’ and no visit to the the famed toy shop(s) with demands fired at me from both end of the proverbial ‘gun’. Today I could go where I wanted, browse every shop in the market. Today I did not have to halt at the Pizza vendor and order three slices of pizza for my ever hungry big boy, or look for the missing ice cream vendor for my tiny vanilla ice cream lover. Yes I could do what I wanted except rewind the clock and savour one more of those delightful moments.

I miss you!